283. Neurodiverse Hiring Initiative

Neurodiverse students often struggle to get co-ops, internships, and their first job because they face significant social barriers during the process of securing such opportunities. In this episode, Kendra Evans joins us to discuss a program at the Rochester Institute of Technology that helps this population of students build the skills needed to navigate the hidden rules of interviewing and supports them through their internship experiences.

Kendra is the Coordinator of the Neurodiverse Hiring Initiative (or NHI) at the Rochester Institute of Technology [RIT]. NHI facilitates myriad programs that build the confidence and job readiness skills of autistic job seekers, provides guidance and support to employers, and creates unique opportunities connecting hiring managers with RIT’s highly-skilled neurodiverse applicant pool. Kendra is pursuing her MBA to better make the business case for neurodiverse affirming workplaces.

Show Notes

Transcript

John: Neurodiverse students often struggle to get co-ops, internships, and their first job because they face significant social barriers during the process of securing such opportunities. In this episode, we discuss a program that helps this population of students build the skills needed to navigate the hidden rules of interviewing and supports them through their internship experiences.

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John: Thanks for joining us for Tea for Teaching, an informal discussion of innovative and effective practices in teaching and learning.

Rebecca: This podcast series is hosted by John Kane, an economist…

John: …and Rebecca Mushtare, a graphic designer…

Rebecca: …and features guests doing important research and advocacy work to make higher education more inclusive and supportive of all learners.

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John: Our guest today is Kendra Evans. Kendra is the Coordinator of the Neurodiverse Hiring Initiative (or NHI) at the Rochester Institute of Technology [RIT]. NHI facilitates myriad programs that build the confidence and job readiness skills of autistic job seekers, provides guidance and support to employers, and creates unique opportunities connecting hiring managers with RIT’s highly-skilled neurodiverse applicant pool. Kendra is pursuing her MBA to better make the business case for neurodiverse affirming workplaces. Outside of RIT, Kendra is a community organizer and serves on various boards. She has three teenage children and a springer doodle puppy, loves her Peloton and logic puzzles, and her last meal would be a soft pretzel and an IPA at a ballpark, preferably Wrigley Field. Welcome Kendra.

Kendra: Thank you for having me.

Rebecca: Today’s teas are: … Kendra, are you drinking some tea?

Kendra: I am drinking some tea. I was going to Ted Lasso you and saying I’m really more of a coffee gal. But for the occasion, I’m having a little Earl Grey here in the afternoon.

John: Many of our guests do drink coffee or Diet Coke or water.

Rebecca: I did have a silent share. I don’t know if you saw but I was cheering for the tea. I’m so excited that you had tea. [LAUGHTER]

John: And I have Prince of Wales tea today.

Rebecca: And John and I are on the same page because… this is very unusual… but I have the same tea as John.

Kendra: Well…

John: I think that’s the first time in over 280 podcasts.

Rebecca: We chose them independently, and then realized we had chosen the same.

John: We’ve invited you here today to discuss the Neurodiverse Hiring initiative at RIT. First, though, could you tell us a little bit about yourself and your path to becoming a coordinator of this program?

Kendra: Sure. I actually started my career as an elementary school teacher and started off very early, realizing that my training, my master’s degree in education, didn’t actually prepare me for the students in my classroom. And so I went on to get a number of different certifications for the teaching of reading to dyslexic students, for a Lindamood-Bell training for processing disorders. And the more I broadened my skill set for working with learning differences, the more and more I kept coming in contact, and was being referred to work with students on the autism spectrum, mostly because of my passion for executive functioning, and how to basically improve those skills in everyone. And so I started as an elementary school teacher, I did that for a few years, became a learning specialist. Then when we relocated to Rochester, I opened my own small business. And while I was working in my brick and mortar social learning environment, RIT found me, my supervisor, Laurie Ackles, and the rest is history. So that’s where I came from. And then of course, I can tell you about the program itself. But that’s my trajectory was basically I’ve taught students pre-K now through higher ed.

Rebecca: You’ve hinted a little bit at your passion towards this work. Can you tell us a little bit about the origin of the initiative?

Kendra: Sure, well RIT started helping students transition from high school to college back in 2008. And one of the reasons that many students choose the Rochester Institute of Technology is because of the career and cooperative placement, we have a very robust, it’s like an apprenticeship program. In order to get your degree and most of our majors, it’s required that you have onsite experiential learning. And after my team had really moved forward in helping students with their social and their self advocacy and executive functioning, and all of the things needed to succeed for the academics in college, we realized that many of our students, even though they had come to RIT for this job experience, were unable to get their foot in the door. And therefore, when you can’t get your co-op that’s required, even though you’ve successfully completed all of the other content area requirements, they weren’t graduating. So this became the next barrier to employment and purpose and belonging in that meaningful adult life that we’re hoping all of our students succeed at. And so, thankfully, we have a gift funded initiative, thanks to the many parents that are very supportive of the work that we’ve done over the years. And so in 2018, we received this gift and pretty much were given carte blanche in order to do the work as we saw what our students needed and what employers were looking for. And in 2018, we started getting our students those first co-ops by partnering with employers and working on job training, and it’s gone from there.

Rebecca: Can you talk a little bit about some of the barriers that you indicated that the students were having or facing trying to get their foot in the door for those co-op experiences?

Kendra: Sure. Well, interviewing is still a dominantly social process, right? We have to pick up on cues. We have to modulate our voice, we have to code switch, we have to dress appropriately. There’s all kinds of unspoken rules that our students are not prepared for. Even though they have the same hard skill set from RIT that their peers have, the social barriers were just really great. And so that’s one of the main difficulties with our students. Also, job descriptions can be a barrier for my students as well, because if employers are not distinguishing between “must-have” skills and “nice-to-have” skills, my students will often not apply to something if their exact major isn’t listed, if they’re like, “Oh, I’ve only had one course in C++, I haven’t had two, maybe that’s not enough.” Those were things that were keeping my students from even applying. There’s also things on the employer side that in addition to the way we’re looking to interview, when we’re looking for a best fit, that concept of best fit in the social aspect of the interviewer can inadvertently exclude this highly skilled talent pool simply because they don’t necessarily give you a warm and fuzzy, let’s say, or they don’t answer a question in an expected way. And so I often make the business case for: “Are you looking for expected? Aren’t you looking to get a job done and bring innovation, let’s talk about what is unique about my students, what they’re bringing that you already want, and what’s going to be different, that’s going to set your company apart.” And so those are some of the barriers in how I work with employers and with students to make that match and just make sure that we’re all speaking the same language,

John: what are some of the skills that the students you’re working with have that would be useful that are not generally recognized in an interview,

Kendra: There are so many. My students are passionate intellectual problem solvers. And I’m not saying that the rest of the RIT students aren’t. But that is definitely something that I will put forward. These are individuals who strive to do their best, they look at problems differently, and they’re going to stick with it. There’s a problem to solve, they’re going to follow it from beginning to end. I often say, and this is very general, but I’m neurotypical, I’m an extrovert, I’m going to spend time at work doing things not always just my work. Whereas I will tell you that my students can hyper focus on that task at hand, and they’re going to work very efficiently to get it done. So there’s just a multitude of things I could talk about, but their problem-solving skills, their stick-to-itiveness. And just their different way of approaching a problem. We don’t all want to be the same. It inhibits the creative process. And if you want to be innovative, we all know that you have to have creativity and a bunch of minds coming together.

Rebecca:So it sounds to me, based on what you’re describing is that you’re helping facilitate matching students to opportunities. Is that the role that the initiative is taking? How are the students getting the placements?

Kendra: So my role, when I describe it, it’s really three main goals. The first is to work with our students, to talk about those unspoken rules, to make them more job ready. The National Association of Colleges and Employers have identified 16 skills. So I work to let them know, “Hey, you’re actually being judged on these things. Let’s talk about them. Let’s practice and let’s teach you how to talk about your experience,” because oftentimes, they don’t realize that they have that. So I work with the job seeker. I work with the employer to implement universal design, so they’re not excluding anyone. And so actually, universal design helps all employees, not just autistic employees. And then yes, I’m the matchmaker, the bridge, the pipeline between the students and the employer. And we come up with creative ways to do that, including reverse job fairs, we partner with our career services office, we have information sessions that are low sensory and low stress, that’s a lot of what we do, is just to make sure that this is an environment that models best practice and how my student is going to be the best performer for your company. So those are the three main aspects of NHI.

John: You mentioned reverse job fairs. Could you explain what that is for people who have not heard of those before?

Kendra: So at RIT, we call it an affinity reception. And if you can picture a job fair, think back to our first jobs where you go into this large auditorium, you have 250 employers, and all the job seekers are dressed in their blazers like I happen to be today. And they go up to their 30 seconds of fame where they’ve got to give an elevator pitch, they got to wait in line, your recruiters are tired and cranky, and the sound is cacophony. It’s a lot. What we do is we bring our students and they sit at the table, we have fewer employers that are coming around which the students get to know who they are ahead of time. We prep for all of that. But then the employers circulate around the tables to our students as opposed to the reverse. And I’m also there as a facilitator to reach out to the employer: “Who are you? What is your name?” It makes the introduction. So I am frequently the matchmaker in all of these situations. And it really lowers the sensory overload, it reduces the stress factor, especially if you know who you’re going to see, you can prep for it. And you also don’t have to navigate, moving around, bumping into people, the crowds, the noise and we, even in that space, have a breakout room as well, so that students can take a break from the table, go refresh, have some water, regulate ourselves, and then come back out and do it again. So that’s kind of the theory as opposed to students coming to you, you’re coming to the job seeker.

Rebecca: We often talk about universal design for learning in a classroom setting but you were also talking about universal design in this interview setting. Can you talk a little bit about what that looks like?

Kendra: Absolutely. Just like we would translate an accommodation plan from college to career, the concept of universal design is universal, really. And so in this particular case, things that are very helpful for my autistic jobseekers, which I’ll be honest, very helpful for me, things like, “Could I please have the questions in advance so that I can prepare my best answer?” I’m not going to be surprised and therefore anxious and shut down when we’re going to have our conversation. Things like being able to disclose if I need to have a fidget under the table, and why I’m doing that, being able to talk about the lighting in the room, or like, “Where am I going to go? What can I expect? Who’s going to be there? How long is the day going to be?” …just various things like that. Those are some very small modifications to the process that universally help any job applicant feel comfortable, and therefore bring their most authentic and best self to the interview.

Rebecca: Sounds a lot better to me.

Kendra: Indeed. Ideally, we want an interview to be where we’re learning about each other, we’re learning about the job to be done, and we’re both assessing if we think this is going to be something that we want to engage in together. And the balance of power is always off in those interviews anyway, and especially for the first job out of college, or even co-ops, or before that, right? I’ve only been in college for a year and a half. And my students are already interviewing, right? They’re 20 years old, they’ve never had a job before. And now they’re going into this big data analyst co-op position. That’s a lot of stress for anyone. So anything we can do to minimize the stress and maximize the ability to share the skills that I have. And that’s another thing that companies are doing as well, is changing the interview process, so that instead of all of the questions, it’s “Alright, we’re going to bring you to campus, we’re going to give you a problem, we’re going to have you work on it with some of our other applicants in a team. And we’re going to see how you solve a problem, as opposed to how you talk about how you solve a problem.” So it really is much more skills based. Another thing that if you’re going to have not only getting the questions in advance, but breaking those questions down and making them single step, so that I don’t get lost in some huge, rambling answer is very helpful and making sure that they are less open ended and more, “What is the skill I’m trying to assess with these questions?” That’s another Universal Design tactic that helps a lot. And then one last thing that I’m seeing more and more companies use is, are platforms like HireVue, where they can record their answers. The virtual world, this way nobody has to fly to the new Microsoft campus anymore, we can do it from the comfort of our home offices and have as many recordings as we want. Again, all of us misspeak sometimes, it’s nice to have that do-over because I really am trying to showcase what I can bring to your company and my students bring a lot.

John: So it sounds as if employers are starting to recognize this and learn new skills. What role do you play in helping them learn alternative ways of interviewing?

Kendra: It really depends on the company. And we work with big anchor companies. I’ve talked about Microsoft, I’ve taught SAS, Southwest Airlines, they’re now big players in the field that are realizing that diversity, equity, and inclusion isn’t diverse enough if it doesn’t include neurodiversity. So there are some big dogs in the field that are bringing their HR programs, and they’re really working to make sure that they’re doing best practice. Companies like that will often come to me and say, “Hey, we’re doing this, who do you have for me in these fields?” And I am, in that case, mostly just a matchmaker, I help shepherd my jobseekers through the program. I check in with the recruiter: “How’s it going? Where are they in the process? Do you have any questions?” And I’m a matchmaker to make sure that that pipeline is direct, and they’re getting who they need. There are other companies, and these could be startups, these could be other big companies, but they come saying, “Hi, I’m an HR manager, I’m a data analyst, I’m someone right,” it could be anywhere in the company, that they have someone in their family in their network who’s autistic. And they realize, hey, this is something that would benefit my workplace. This is something that would benefit my person, what can we do? And so if you’re at the very beginning phase, I do a lot of nurturing with those companies talking about where can you get more information? Who are the models that you can look at. I’m here for a consult, do you want to interview some of my students, because a lot of what I do at that stage too, is destigmatizing. Autism, it is a spectrum, and so some people come in thinking that, “Oh, I’m going to do some charity work.” And that’s not at all what we’re doing. In fact, at this point, I’m doing you a favor. This is a talent pool in worker shortage. Trust me, companies really get it at this point in time.

Rebecca: You’ve match made, they’ve joined an organization for their co-op for their experience, how have you worked with companies to help that onboarding process and to make sure that they have a good experience once they’ve gotten the experience?

Kendra: One of the wonderful platforms that we partner with is an organization called Uptimize, and they do online trainings for employees, employers, and they have online training modules. I always give the disclaimer, we don’t know each other well, but I’m a highly critical person, and I hate to waste people’s time. So I don’t often send out professional development if I don’t truly believe in it. And I’ll tell you that I did these modules that were shared with us by Uptimize, and I learned things. And so one of the things that we have with them, because they have a whole suite of trainings, but we have Neurodiversity 101, and a basic module for hiring managers, for HR professionals, as well as supervisors. And so when a company is ready to take our students, I can give them unlimited licenses to share with the team, to share with the executives to share with everyone to try to build awareness, because the truth is, with the increase in diagnosis of autism, we’re all working in neurodiverse teams already, we just don’t always know it. So again, universal design is helping who you already have, and also opening up this talent pool that you’re not accessing currently. So there’s widespread benefits, and I’m giving it to you for free. If you want more, you can then go partner with Uptimize, and they’ll do all kinds of accessory training. But here’s a great introduction that we can give to our hiring managers. I often talk to them ahead of time before they take one of my students. The two main barriers once I have the job with you, would be housing, and transportation, learning how to navigate a new city, being comfortable navigating it, figuring out where you’re going to live for these 10 weeks. I remember doing that as a neurotypical, A-Type 20 year old. And so that’s hard for anyone, it’s exceptionally hard for my students. So that needs to be considered. companies aren’t really providing housing or transportation now, but if you’re going to boast about your neurodiversity hiring initiative, you at least need to have answers for me on how you’re going to direct them to these housing sites, here’s what we’re going to do, how is that going to work. And then I also just help make sure that my students are following through on all the onboarding paperwork and things from my end. And then if you’re an employer that we have a partnership with, I’m available to you. I’ll tell you that most of them don’t reach out to me during the co-ops, but I’m here. So if we need to troubleshoot, if something’s going better or worse than you expected, let me know, let’s take it to the next level. It’s about being the best supervisor you can, regardless, and I’m just an extra tool when you work with my students.

John: It’s wonderful that you have this program at RIT. But is this very common in the rest of academia?

Kendra: Well, there are about 75 to 80 programs across the country that are working in various ways at various levels, some are brand new, some have been around almost as long as we have, in order to help support students through this academic process of college. The goal of college is education, of course, and meaningful employment would be my objective at the end of college. So not all of them are handling it in the same way or have the same programming that we do. But that’s in total, there’s about 75 to 80 across the country at this moment in time, that support through the transition from high school to college. And just as I said, we started with that as well. And now we are helping transition into the workplace.

Rebecca: You mentioned early on about feeling not prepared to support the students you had when you were an elementary school teacher. And I have heard this many times, a faculty member at a college or university saying the same thing, maybe not prepared to teach [LAUGHTER] and then also not too prepared to support this particular group of students or many sets of students that are very different from one another. Can you talk a little bit about strategies that faculty might want to be aware of that could help support students like yours more effectively?

Kendra: Oh, absolutely. The more partnerships we can have with our professors and across campus, that’s one of the things when we talk about where this program is going, that’s something that is critically important, both to the academic success, and then, of course, into the workplace. So my students do very well with written communication, typically, and since most of us are using some kind of my Mycourses or online shell for information, please go ahead and upload those PowerPoint slides, please go ahead and put your notes online. Those are not crutches, if you will, those are actual accommodations that are just best practice. I let you all know that I’ve already got a master’s degree. I’m working on my business degree now. And I’m a graduate student in business. And I get that, as a neurotypical, like that’s just best practice so that I can go further than these notes. Doing those kinds of things, super important. Setting up a culture in your classroom where you can take a break if you need to, and just saying that out loud, so that it’s kind of a culture of the classroom, being aware of what could be overstimulating in your environment. In our lecture halls, it’s not as if we have a whole lot of control, but if you’re in a smaller setting, to just go ahead and look at those things. And sometimes some of us talk more than others. I talk a whole lot, we can have a neurotypical person that’s going to suck up the air in the room. That’s something that we’re used to. Giving students strategies ahead of time or if you notice that, pulling them aside, because they want to be their best selves. I’m constantly raising my hand because I love your topic. I’m very excited to please and I want to engage and if you say something, “I notice how excited you are Kendra, if you could pick just two times that you’re going to share out loud during class, and then write down everything else and email it to me, you can give it to me after class.” It’s just basic classroom management kinds of things. And it’s training our students not just to be good students, but to be good citizens, and to be good employees. And it’s how do we do that give and take that maybe some of us take for granted that we learned turn taking, and we were really good at it, and sometimes people need to be encouraged to take more turns, that would be the other end of the spectrum is that when I’m teaching my career ready bootcamp, the reason that I’m here, I usually have those two different groups. And that’s true among neurotypical people as well. So if I’m going to suck up the air, give me some strategies, so that I’m not alienating my classmates and I’m still engaging. And if I’m too afraid to talk, tell me how you want to hear from me, I can email you before class. Give strategies that show that you want them there and that teach them how to be part of the mix, regardless of whether you’re an introvert or an extrovert, or a neurotypical or neurodivergent. Those are some of the really best practices that I can say: share all of that written material, [LAUGHTER] and make sure that you’ve created a culture that just meets people where they are. And like I said, this is universal design. It doesn’t matter if you’re autistic or not. These are just best practices that help everyone. This is something I’m passionate about, and it traces back to my earliest days as a first-grade teacher. As I told you, I went through Orton-Gillingham training to teach dyslexic students because I came out with a master’s degree, and then had no idea how to teach reading. I had no idea what I was doing. That’s whole language, it’s all the stuff. And when I would come back from this very intense training that is specifically for dyslexic students, and I wanted to teach it in my private, high-end, elementary school, I had to justify why I was doing that. Well, why does my student need this particular program, and I was able to say, “Orton-Gillingham breaks language down into pieces. And if I teach this way, it’s the way that this particular subgroup requires in order to learn how to read, we’re keeping reading from them, if I don’t teach it in this one way, but for everybody else that gets it broken down, this is helping them with all of that language that you’re going to hit later on… the words that are not first-grade words, they’re going to be able to decode it, because that’s how their brain works, and I’m just giving them new pieces of the puzzle.” And so when I talk about how I’m teaching reading to first graders, or how I’m teaching job readiness to 22 year olds, it’s the same idea. It’s just: how do we help everyone? …and tailoring our design to be more inclusive, it’s just what we should all be doing.

John: Right now we’re running a reading group that focuses on Inclusive Teaching by Viji Sathy. And Kelly Hogan, and much of what you’re describing seems like the type of structure that they encourage people to use, and small group discussions and providing ways for all students to be comfortable. And we’re seeing that a lot, that there’s so many things converging in terms of things that are effective in helping people learn show up in many different approaches in terms of studies of how we learn, studies of effective teaching methods, studies of creating an inclusive environment. And pretty much all these methods benefit all students, but they particularly benefit those students who don’t do as well without the support provided. And it sounds like this is another form of inclusive teaching.

Kendra: It is. I couldn’t agree with you more. Regardless of the age, we all need to feel safe in the environment. And I’m not going to feel safe if someone’s interrupting me or talking over me. I’m not going to feel safe if I don’t feel like the teacher wants to hear what I have to say. I’m not going to feel safe. If I don’t understand the information or I have sensory overload. It doesn’t matter, we all need to feel safe first. Second, the next buzz would be belonging in higher education, and how am I connecting to my peers and connecting one on one to either my teacher or my professor? How is that working? And then you have the content that comes after all of that. So we really do have to work on our classroom management, we really do have to work on that personal relationship with our students. And then it’s the same in the workplace, we need a safe workplace where I don’t have to mask but I can be my authentic self and therefore I can bring my whole brain capacity to the job, I’m not worried about if somebody’s going to notice something about me or I’m going to feel uncomfortable or they’re going to feel uncomfortable. It translates across the lifespan of a learner.

Rebecca: And most of these things are not difficult.

Kendra: You’d asked about my relationship with either professors or with employers. And I’ll go back to the employer piece because the concept of ADA and IDEA can be scary and intimidating to human resource managers. And so when I talk about what is a reasonable accommodation for my students, most of the time, it’s me asking for a supervisor to just be a very direct and explicit supervisor. It’s things like: can they wear their noise-cancelling headphones while they’re working to kind of drown out some of this din? Are they able to work at home? Are there hybrid options that are available? Is it okay if they take their shoes off under the desk? These aren’t even things that cost the employer any money. These are just sensory regulatory issues, and then it goes into things like: Can you please set a regular weekly meeting with your employee so that my student knows when to come to you. And it goes back to that Which type of person am I? Do I ask way too many questions all the time? Or do I never ask a question and then it’s a barrier for me accomplishing the task. So if I know that I’m going to meet with Kendra every Monday, and I have to bring my list of questions that helps both sets. It also, as the employer, gives me the ability to check in on where you are and advance, because that’s the goal. Even if you’re not considered a teacher or professor anymore, that’s what a supervisor is. Our goal is to elevate our employees and help them reach the next level, at least, that’s my definition of what a supervisor does. So. I like to share that, yeah, and these things are not big cost. They’re big returns on your bottom line, is what it is. So if I can be myself at work, I’m going to work while I’m there. And that’s really what it is.

Rebecca: You talked a lot about at the beginning that the Institute started with the transition from high school to college. Can you talk about some of the things that are important to support neurodiverse students in that transition?

Kendra: Oh, definitely. So there are five pillars to the program. And the one that we’ve talked about would be career and co-op. So we’ll go ahead and move that to the side. Social is a really big piece, that sense of belonging, self advocacy, how do I ask my professor? What are the deadlines? Can I leave the room? Self advocacy and all of those areas. Wellness and health is a really big deal. And the fifth one is executive functioning, where I’ve done all of my studying. That’s what we do, is a lot of executive functioning. So those are the five pillars of the program to help them transition. And we do a lot of work. Also, just like we onboard for a job, we do special onboarding for our students as they come in and their parents. And I think that’s a really important shout out is that oftentimes the support system for all of us gets overlooked… it’s our partners in life, it’s our children, it’s our parents, it’s all of those people. And for students on the spectrum, these are parents that have had to be varsity parents for a really long time to navigate the 504s and the IEPs and all of the social learning that has to happen in K through 12. And so onboarding the parents that this is a young adult, they’ve gotten into RIT, you did this. They’re here, they got this, and we’ve got them. So to do that transition on: “here’s what to expect.” And it’s all the same things. It’s like, “Where are you going to go? Who’s your point person? How are you going to do this when a problem arises… because it’s going to… where do you go?” …and I don’t say that, because you’re autistic, I say that because I can look at both of you and say, something’s going to happen that we have to navigate. And we have to stay emotionally regulated, and we have to problem solve, and we need to know who to ask for help. These are life skills for any person. Again, it’s back to universal design. But that’s part of what SSP, our spectrum support program does, specifically for our parents and students, is a lot of that onboarding and letting them know that we’re here and you earned this, you did this, you’re going to be okay, you’re going to survive, you’re going to thrive, this is going to be great for you.

Rebecca: Can you talk a little bit more about the executive function part of the program?

Kendra: Well, I always like to talk about executive functioning. So the first thing I’m going to do is tell you my favorite executive functioning 101. I want you to picture a stop sign, S T O P, and when we’re talking about executive functioning, we’re talking about space, time, objects, and people. So if I need to function in any environment, I need to stop and think about those things. Think about an elevator, what’s the space like? How long am I going to be there? Am I supposed to talk to the person? You go through space, time objects, people, and when you transition into college, it’s a big difference, because in K through 12, a lot of that’s managed for you. And then you get sent off to college. Oh my gosh, the schedule changes, the classrooms are different. I have to get from my room to all of this. And I have to factor in travel time. How long do these long papers take? How do I chunk those assignments? So everything we do is space, time, objects, people, and I’ve been using that since I was a first-grade teacher and all the way up because you can chew on that, everybody can understand this is what I’m thinking about in this environment. And so we do a lot of visual scheduling so that you can see your “must dues.” Where are your blocks? How do you plug in the things that you need to accomplish? We do planning on here are all the assignments that are coming up. How long do you think this will take? Time management is often a hiccup for my students. Again, think about the people in your lives. Some of us are really good at some pieces of executive functioning, and some of us are not. I can tell the time down to the second most places, people think I’m a savant, but I can’t organize to save my life. I have 22 tabs open right now on my computer. I struggle with that, and I’m neurotypical and high achieving and mid career and all of those things that you’re supposed to check the boxes off. So when we’re helping our students transition from high school to college, how do you navigate those four things? And some of them you’re going to be stronger at than others. Everybody is. So what are the tools so that you can be independent and accomplish your goals here? And that’s a lot of what we do. And of course, as I told you, there are those five pillars, so when it comes to career and co-op, I have a whole other set of how we’re talking about space, time objects, people. We also talk a lot, as I said, about social and about well being. I remember being horribly homesick. I didn’t like my roommate. There’s all of those things that all of us have to navigate. And so when you don’t like your roommate, because you didn’t get that single, what do you do? How do you navigate this? When you’re lonely, what does that feel like? What are the alternatives? And then of course, if something does happen, we always plug the students into those campus resources. So how are you doing? What do you think? Let’s walk down to counseling. Let’s just walk down together right now. They know they can advocate for themselves, but they also have somebody that’s going to walk on this journey with them, and that’s really important. And it brings, I think, peace of mind, both to the student and, of course, to their families that they’re sending out of the nest for the first time.

Rebecca: I think the things that you’re talking about in terms of executive function should be an all first-year classes, [LAUGHTER] it should be built into the curriculum.

Kendra: I think every professor would thank me, if it was, [LAUGHTER] and I say that about my career ready bootcamp. I would have been so much better off, if I’d have this kind of training going into my first job. It’s universal design. If we were doing this kind of prep for everyone, I think every employer would be happier. But my students specifically need the explicit instruction on “This is what they’re looking for. When you do this behavior, this is how they feel, and this is the outcome when that happens.” You need those behavior maps in order to teach the lesson that is not coming in through osmosis. And to be fair, one of the reasons there’s such an employment divide is, autistic students and adults, they’re not getting jobs, they don’t have any work experience at all. So if you’ve never been in a work environment, how are you supposed to know how to behave in one. I remember, again, as a learning specialist in elementary school, we would go over social situations like a birthday party, any birthday party, I don’t care who it is or what age, there are certain components that you can expect so you can stay self regulated. You can know how much time it’s going to take, you’re going to know you have to bring a gift of some sort, again, space, time, objects, people and here are the classic things. It translates into adulthood and the workplace. Like you need to know how do you code switch? What does that even mean in this new environment? And you can show how you’ve mastered it through your lifespan and here’s just the next frontier. We spend a lot of time doing this, and I will just say, in terms of our program, I’m excited that we have this funding, I’m excited to be able to do this at RIT and for that kind of buy in. In this last year, we used to offer career ready bootcamp, just once per year. I was able, being full time and with the buy in now, we offer it three times, which means if the average incoming population that works with SSP is about 30 students and I was able to get 24 students through the career ready boot camp in this first year. So that’s something that they’re all going to get to take. And so now that we’ve got this model that’s working really well and is self sustainable and that we hope we can take to other colleges to do this. We’re working on different ways to support the student across their learning journey at RIT. And so we’re doing some alternative, like a spring break trip, I’m actually taking a cohort of eight students to New York City in March so that we can go visit four different employer sites. And we’re gonna go over beforehand the T chart of what do you see? And what do you hear? And in these specific categories. Is it an open space, is everybody in a cubicle? Are they talking to one another? Or are they working by themselves in headphones? What is the culture that you observe? How are people talking with a list of, like, what are you looking for? Be a social detective, so that we can then come back and debrief and I’m intentionally going to very different environments, so that they probably haven’t been in a work environment before. And we’re going to some really big ones, and to be able to say for themselves, “Oh, I can do this.” I know what to expect. And not only can I do this, I know what I prefer, and I know why I prefer it. So again, it helps that self advocacy, it helps to be your authentic self. And these are employers that all have neurodiverse programs and want my students. And I have to tell you that that is the most rewarding part of teaching career ready boot camp is when I have SAS come to talk or Southwest Airlines and I get to set the stage with students of “You are wanted. I know you’ve spent your lives feeling other. No, no, they’re here early for you. It is August, they have not posted these jobs yet. They are here to get a front-row seat to my RIT talent.” And you can just see them, they just sit up so much straighter. And in all of the post career ready boot camp survey, that’s what they say… it was just I never thought that people were going to want me… never thought… or it felt so good to have someone come here. And they do, I mean these employers give a 45-minute presentation of how we are thinking about you and your needs and here’s how it’s really great. Oh, and here’s somebody that did it. Like Southwest Airlines started their program last summer and had one of my RIT students and brought her back to career ready boot camp… and to hear her share her experience and what it was like and the students were able to ask like, “What’s your one piece of advice? What do you think you did the best in the interview? What do you think you did the worst?” And this is my best piece of advice that I really want everybody to hear going into this interview. They want to know how you solve a problem. Just like in life. I just want to know that you’re listening to me and that you’re going to try,. I want to know your initiative and your problem solving and so the student comes back. And she says, “I got this question and I didn’t know the answer, and I started to panic. What I did is I took a deep breath and I looked down at my notepad, because we always say, have reasons, have ways to distract yourself. I looked down, and I composed myself, and I looked back up, and I said, ‘I honestly don’t know. But I’ve solved other problems. Here’s how I would approach that.’” And she went into what she would do next. She’s like, “I think that’s what got me the job.” Because again, it’s how do I solve some them? Am I going to give up? Am I going to whine? Am I going to complain? Or am I just going to get to work, because again, these are co-op positions. And then I talk about what a co-op is: “Think of it as a class. This is like the lab to your bio class. This is you getting out and putting those skills to work.”

Rebecca: This sounds like a really great program. We always wrap up our sessions by asking: “What’s next?”

Kendra: I love “what’s next?” I don’t know if you’re West Wing fans, but “what’s next?” is what’s asked by the President every time he’s ready to push the agenda forward. And so that is actually how I kind of live my life is “What’s next?” As I told you, we’ve expanded career ready bootcamp, we’re now doing alternative spring travel. And we’ll do winter term travel with our students to give these opportunities. What I’m most excited about, we’re always looking to increase the impact on our students, we’re always looking to increase the reach to the community, and how do we train the trainer. So that’s a big goal is to be able to take this career ready bootcamp to other universities and show them how they can make it their own and help their students. I’m also working with a lot of partnerships on campus, because that’s where creativity happens, because we were talking, it’s all cross disciplinary. And so we have a program called RIT certified that works with online options. And so this will reach not only within RIT, but wider. And so we’re going to have modules for managers. So if you’re taking an HR class, if you’re taking this managerial certificate, you’re going to get best practices and universal design, so that we can do the reach further. I’m also going to work with our business school to be able to have internship programs, leadership certificates, things like that. So that it’s not just helping the autistic student or the already employed, but we’re planting the seeds so that as each of these people go out into their various networks, it’s a wider spread awareness and knowledge. And so I think those are the main ways that we’re looking to take care of impact is cross collaboration and expanding the model.

John: You’re doing some wonderful work. And I hope we’ll see more campuses and more programs like this, because individuals who are autistic often have trouble finding those first jobs where they’re successful. And we’re wasting a lot of resources that can bring some real strengths to organizations and to businesses out there.

Kendra: That’s true. But as I said before, these are business solutions. This is an untapped talent pool that really the sky’s the limit here. In all spaces, we need to make a bigger table. We need to make room for everyone and make sure we all have a place. So that’s what we’re doing.

Rebecca: Well, I know that we’ll look forward to getting some updates maybe from you in the future about this program and the next things that you have planned.

Kendra: I would love that and maybe you can recommend some tea alternatives for me. [LAUGHTER]

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John: If you’ve enjoyed this podcast, please subscribe and leave a review on iTunes or your favorite podcast service. To continue the conversation, join us on our Tea for Teaching Facebook page.

Rebecca: You can find show notes, transcripts and other materials on teaforteaching.com. Music by Michael Gary Brewer.

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253. Designing for Trauma

 Universal Design for Learning principles were developed to make our courses more accessible for all students. In this episode, Andrea Nikischer joins us to discuss how universal design principles can be expanded to address the trauma that can adversely impact student learning. Andrea is an Associate Professor and Program Coordinator for the Adult Education Program in the Social and Psychological Foundations of Education Department at SUNY Buffalo State.

Show Notes

  • Nikischer, A. B. (2021). Universal Design for Trauma.
  • Nikischer, A. (2018). Life after# MeToo: Understanding the impact of adolescent sexual assault on education and career. International Journal of Learning, Teaching and Educational Research, 17(10), 86-98.
  • Horsman, J. (2013). Too scared to learn: Women, violence, and education. Routledge.
  • Horsman, Jenny (2006). “Who will hear? Who will see? The Impact of Violence on Learning: A Historical Journey.” Canadian Woman Studies/les cahiers de la femme. Ending Woman Abuse, Vol. 25 No. 1.
  • Horsman, Jenny (2005). Moving Beyond “Stupid”: Taking Account of the Impact of Violence on Women’s Learning The International Journal of Educational Development, Gender Equality in Adult Education, Vol. 26, Issue 2.
  • Nikischer, A. (2019). Vicarious trauma inside the academe: Understanding the impact of teaching, researching and writing violence. Higher Education, 77(5), 905-916.

Transcript

John: Universal Design for Learning principles were developed to make our courses more accessible for all students. In this episode, we examine how universal design principles can be expanded to address the trauma that can adversely impact student learning.

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John: Thanks for joining us for Tea for Teaching, an informal discussion of innovative and effective practices in teaching and learning.

Rebecca: This podcast series is hosted by John Kane, an economist…

John: …and Rebecca Mushtare, a graphic designer…

Rebecca: …and features guests doing important research and advocacy work to make higher education more inclusive and supportive of all learners.

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John: Our guest today is Andrea Nikischer. Andrea is an Associate Professor and Program Coordinator for the Adult Education Program in the Social and Psychological Foundations of Education Department at SUNY Buffalo State. Welcome, Andrea.

Andrea: Thank you so much for inviting me. It’s great to be here.

John: Right before this. We were talking a little bit about this, and you were a student here. So welcome back.

Andrea: Thank you. I loved my time at Oswego State, and I still have my mug and my sweatshirt in my office at Buffalo State. So it’s great to continue being part of the SUNY family.

Rebecca: It’s so great to have you here. Today’s teas are:… Andrea, are you drinking tea?

Andrea: I am. I actually love tea. And today….

Rebecca: Yay!

Andrea: …I’m drinking my regular afternoon tea, which is a double green matcha from the Republic of Tea.

Rebecca: Nice. And I noted like a really beautiful mug.

Andrea: I am an avid tea drinker since I was in my teens. So it’s wonderful to be able to talk about tea… one of my favorite subjects.

Rebecca: it looks like a mint colored mug with, is it butterflies?

Andrea: They are birds, birds of peace, I think is the theme of the mug.

Rebecca: Awesome.

John: And I am drinking a ginger tea.

Rebecca: And I have English breakfast today.

John: And next time you’re on campus, stop by the CELT office where we have over 100 teas available.

Andrea: Oh, I’d love to.

Rebecca: …always welcoming tea drinkers.

John: We invited you here to talk about the presentation that you gave at the SUNY Conference on Instruction and Technology. Rebecca was able to attend that… I wasn’t able to because I had to be in another session at the time. So this is a chance for me to catch up a little bit on that and so that we can share this more broadly. Your presentation was titled Universal Design for Trauma. Maybe we should start by talking about how prevalent trauma is.

Andrea: That is a really great and, I think, complicated question. I actually have been working with trauma since really right out of my undergraduate degree at Oswego. And I started work at a rape crisis center. And I worked in the sex offense squad of a police department as a victim’s advocate. And my interest, when I moved into education, was in studying the impact of trauma on educational outcomes and what I call the life pipeline or career and life trajectories. But when I wrote this paper, it was 2019 in the fall, before COVID, before we knew what was coming. And at the time, we were really looking at statistics, around 70% of adults in the US will have experienced trauma at some point in their life. Obviously, depending on what age group we’re talking about, the statistics will be different, but over the course of the life around 70%. Now, today, post COVID with the extreme increase in gun violence and mass shootings, with a televised violent attack on the US Capitol, with a war, climate disasters, and crisis, I think it’s really difficult to measure what the true number is, and that, indeed, the best response is to assume that close to 100% of the population has dealt with some form of trauma in their life, and certainly through the global pandemic and more recent crises. As I’m sure you know, here in Buffalo, we had a white supremacist mass shooting, towards the end of the semester. Our students live and work in that community. And so for us in returning to school in the fall, we will certainly be treating the situation as if every student has a history of trauma.

Rebecca: You and others have investigated the impact of trauma on academic outcomes. Can you talk a little bit about this research?

Andrea: Absolutely. There’s a fairly large body of quantitative research in Europe, as well as some studies here in the US, showing a clear, significant negative relationship between trauma and academic outcomes. Trauma is interrupting the academic process leading to lowered academic success or achievement, as well as lowered career status or career achievement. And really, some of the research can show that over the course of a lifetime, we’re seeing actually a significant reduction in earnings. So you’re seeing the sort of interruption points when trauma is experienced during youth and adolescence that is interrupting the educational outcomes. So if we’re seeing that trauma before age 16, some of the studies before age 18, or 21, we’re seeing that interruption during adolescence, during emerging adulthood, that really important period between 18 and whenever you become an adult, which, you know, can vary based on who you are, but usually we’re looking at 18 to 29 and beyond. That’s the most important sort of period for setting up your future career and earnings. So when we see trauma happening before or during that period, we’re seeing the most significant impact on educational outcomes, career outcomes, and again, lifetime earnings. I conduct qualitative research. And so I’m building on the work of Jenny Horsman from Canada and other researchers who’ve studied, through qualitative methods, the direct impact on education. She has really terrific work, “Too Scared to Learn,” and my research validates and extends her previous work showing that, specifically sexual violence, makes it extremely difficult to learn, work, complete assignments, engage in the educational experience during adolescence or emerging adult. And, so my participants were raped or sexually assaulted as a child or as a teenager. And we really went through how that process impacted their educational trajectory. And the results are just very significant in terms of how they describe the change in their relationship with schooling after the sexual assault. So you have students who are honor students, all As, dropping to Cs, Ds, Fs, and really nobody asking about trauma. What is going on here? Lots of questions, but nobody getting the key question of was there a trauma? …and specifically was there a sexual assault or sexual violence? The last piece of that point is that, for my participants, we are talking about a significant change to their engagement with schooling. And one of the most famous, or I should say, one of the most moving quotes from my research, which has been published in a few different areas. One of my participants said, “I go to school, and they want me to know about the first, second, third President, but I don’t care about the first, second and third President, I’m thinking about going home to slit my wrists, schooling just doesn’t have importance anymore.” And so I had participants who spoke about having commitment to schooling, wanting to go to Ivy League schools, wanting to have really significant career aspirations. And then after the sexual assault, just completely focusing on an eating disorder. Schooling was replaced by this unhealthy mechanism for dealing with trauma. So, right now, trauma is widespread. And we don’t know yet what the long-term impacts will be for the students of the COVID pandemic, for the students dealing with widespread school shootings and fear of mass shootings. But we have a clue from the previous research that there are serious risks to long-term educational outcomes and career achievement and earnings.

Rebecca: There’s been a lot of conversation during the pandemic about digital accessibility and universal design for learning to address students with disabilities and mental health has certainly come more into that conversation. And you’ve proposed a universal design for trauma. Can you talk a little bit about what that framework looks like? And how that relates to Universal Design for Learning?

Andrea: Oh, yes, I’d be happy to. Let me start by saying I’m building off the amazing work done with universal design, starting with construction accessibility questions and moving into learning. And in fact, many scholars had previously tied trauma and mental health directly to accessibility concerns. I’m certainly not the first to make that connection. But I think I was in a great position having the experience working in trauma as a rape crisis counselor, and then moving into education, teaching 100% online for the last 10 years, having that sort of perspective, both worlds. For me, universal design is all about making sure that all of our students can fairly and successfully participate in learning. And so we’ve done a lot of work thinking about accessibility in a variety of different settings, but not much had been done in terms of asking questions about trauma. For my work as a rape crisis counselor, and through my research with survivors of trauma often was discussed that students would struggle in particular scenarios in their education. So a universal design builds on this great previous work of Universal Design for Learning, and focuses specifically on addressing the needs of students with a trauma history. Like all forms of universal design, this benefits everyone. So even if you don’t have a trauma history, sometimes you may experience distress if content is presented in a way that is not thoughtful, and that content has the ability to cause distress among the students. So trauma triggers are something we talk a lot about in the trauma field, and certainly is a major issue of concern in educating students with a history of trauma. Trauma triggers are really very personal typically. So it might be a site, a smell, a song, something that brings you back to that trauma. But there are some content areas that are universally considered universal triggers or universally triggering: content on war, content on sexual assault, sexual violence, content on suicide. These content areas can even cause distress in students without a trauma history. So universal design is certainly focused on students with a trauma history, but has the ability to make the learning environment more successful for everyone, healthier for every student.

Rebecca: In your framework, you lay out five principles for universal design for trauma. Can you give us a little insight into those five principles?

Andrea: Yes, I can. So these are the five things that I focus on in my work. So there are certainly other things that I think can and should be brought into the conversation. But for me, the five things that I really focus on when building a course, address what I think are some of the most important concerns for students. So I should say, I teach courses on sexual assault and family violence and other areas that are potentially universally distressing. And so I started building this concept of universal design, probably 10 years ago, in what I call “teaching sensitive topics online.” I did a lot of presentations and writing and professional development about teaching sensitive topics. But universal design goes beyond that to say that every class has the potential for triggering past trauma. So it’s not just those courses teaching sensitive topics, but all courses. And one of the reasons I moved into a more universal focus was because a lot of my students in my courses who were not being taught anything potentially distressing, were disclosing violence to me in personal journals, and other assignments, in large part because they knew my professional history and research area, but also because trauma can be triggered outside of those universals. But let me talk a little bit about those pieces that I’ve included in a universal design for trauma. And the first one is strategic content planning. So the first question educators must ask themselves: is this trauma content central to the learning objectives of the course or program? So when we are teaching a course, truly any course, the first thing we want to do is scan that course to see if there is any potentially distressing content included. And again, we’re looking for those universal trauma triggers: war, violence, violent imagery, sexual assault, police violence, etc. So the first step is really to say, is there anything in this course that could trigger trauma? And the next step is to say, if it’s here, does it need to be here? I’m very concerned about the what I call gratuitous inclusion of trauma content. I am a dedicated proponent of academic freedom. I never want to tell any faculty member what they should teach or what they can teach, but I do encourage faculty to take a close look at all materials they use that have the potential to be distressing and/or trigger past trauma and to ask themselves, is this content necessary in this course? Is it directly linked to the student learning outcomes? Is it the best possible resource to use in this course? I teach courses on family violence. The entire course is potentially triggering, I cannot remove that material, nor should I. It is directly linked to the student learning outcomes. So it’s going to stay in the course. But I’ve had other courses where I’ve wanted to include something. One example would be my diversity course, where I’ve had materials included and I’ve had to go back and reconsider if it is the right way to approach the material we’re covering in the course. Even if the materials linked to the student learning outcomes, it’s asking, Do I need to include this potentially distressing, potentially triggering, content in the course, that’s step one. And then if we do need to include it, we move on to another step, or how to deal with that. But I’m very concerned about just including a story about incest in a certain community, because we like the story, and then not really thinking about how the trauma of that story may impact the learning in the course, because we don’t want our students learning to be stifled because they have been triggered or are experiencing distress. So it’s really about the thoughtful process of selecting materials that are directly linked to our student learning outcomes, and not including any gratuitous.

Rebecca: So for folks that aren’t typically teaching topics that would be universally triggering, this first step is the key one for them to focus on?

Andrea: Well, yes, I mean, it’s the beginning. I think they’re all key in their own way [LAUGHTER]. But this one is most closely linked to our step on content and trigger warnings, which is an important part of the process. But I do think this is one that opens a lot of faculty’s minds to what is going on in their own course. A lot of faculty members, if they are not explicitly teaching a course on a sensitive topic may not be doing the thoughtful review of content to sort of find where there may be the potential for trauma or stress. So this is definitely a universal step that applies to all faculty members teaching all courses, both those with trauma content, and those that do not focus on a trauma topic.

John: A while ago, I ran into a situation where I had a reading in my introductory microeconomics class that looked at the marginal cost and marginal benefits of trying to improve safety on airlines by adding additional exit doors and such things. What I didn’t realize was that I had a student in the class whose father had just been shut down in the Gulf War, just a week or so before that. And ever since then, I’ve been much more careful in selecting material that might have that sort of an impact, because it was something I had not considered and it had not been an issue before, until it was.

Andrea: That is such a great point. And even I, who have been working in this issue of teaching sensitive topics for so long and thinking about trauma, have found that in the courses that don’t focus on a sensitive topic, I’m more likely to not be as thoughtful about the potential impact of materials. Thank you for sharing that example. Very relevant.

Rebecca: So I think the second principle in your framework is trigger and content warnings.

Andrea: Yes, and step two, the second principle is really connected, obviously to the first step or principle in that, if we have identified content that has the potential to trigger past trauma or cause distress, then we need to include the trigger and/or content warning. I actually did a project on trigger warnings, a research project around 2018. And you may remember 2015-16, there was a lot of heated debate about trigger warnings: Are we coddling students? Are we dumbing down the curriculum? Are we violating academic freedom? And where I landed on that in this research project was that this in no way requires a faculty member not to teach something. It simply is a matter of accessibility for their students. By telling your students in advance that something potentially triggering or distressing is coming, you give them the opportunity to prepare for that learning. When a trigger comes out of the blue, when you’re not expecting it, that is one of the most high risk times for having a negative reaction or a negative trauma response. So it doesn’t require faculty to change what they’re teaching or to eliminate rigor in any way. It simply allows students to know in advance that the content may be challenging to them in some way. So it was great that I was able to do that research project before this. And in fact, several scholars who were on the… it really was a debate… many of the papers were written as a debate. Many of the scholars on the side of the pro-trigger warning debate linked it directly to accessibility. And so I was able to sort of build from their wonderful work and from the arguments they made in that 2015-16-17 trigger warning debate. So what is a trigger warning? What is a content warning? it does not need to be complicated. I train the medical students at the University at Buffalo in family violence identification and reporting. And my number one takeaway is do not overcomplicate, it does not need to be complicated. All you need to do is say, we are going to be talking about, reading about, watching a film on, whatever the activity is, a topic that could be distressing to some students, please know that this content is coming. And then I always refer them back to the resources on campus and in the community. It can be one sentence, a simple heads up to let students know this may be distressing content. And if you’re on YouTube, or Twitter or Tik Tok, you’ll see actually a lot of these videos and imagery is now labeled with those really quick trigger and content warnings. Just a sentence is fine. Again, you’re just letting the student know: it’s coming, I don’t want to catch you off guard.

John: The next point in your framework for universal design for trauma is what to do about those situations where there may be some content that will be triggering for people. And what do you suggest in those cases?

Andrea: So my next step, or principle, whatever we want to call it, is alternative readings and assignments. So I always encourage faculty who are teaching particularly courses that are focused on sensitive material, but even those that include some unit or smaller section, with potentially distressing or triggering material to set up, where possible, alternative readings and assignments. So I’ll give you some examples of what I do. In my course on family violence, the whole course is potentially triggering. I cannot remove every reading and assignment. But I am very thoughtful about how I approach the work in that course. For example, we read a autobiography, which describes the experience of a sexual assault during college and the long-term impact on that woman’s life, including drug addiction, recovery, and moving on through the phases of her life. I like this book, because it shows the long-term impact in a narrative way. As a qualitative researcher, i love those narrative data. But there is one chapter in the text, which is an extremely graphic description of the stranger rape. And so I label this reading ahead of time, I tell students before the course begins, before they have bought their books, on the reading calendar, and in several locations. You do not need to read this chapter. This chapter is distressing, it is potentially triggering, and you don’t need to read it to get the value of the text. It is a chapter you can eliminate without any repercussion to your learning about this topic. So, in that case, we’re still reading the book, but we’re taking out the most distressing part of the text and I always make it optional. And a key point of any alternative reading or alternative assignment is that it has to be universal. You cannot ask a student to come to you to seek an accommodation. We do not want to force a trauma survivor to come to us to disclose their trauma, to seek an alternative reading or assignment. Please don’t do that. It needs to be built in… that universal design, right? That is the whole concept of universal design, is it is built in for everyone. So that optional chapter is optional for everyone, it does not matter what their trauma history is. And in that same course for the final assessment, which is really the big culminating assessment for the course, I allow the student to choose from five different options: a research paper, a book review, a lesson plan, a community service experience, or creating a domestic violence workplace protocol. I do this because it gives students choice and agency over how they will engage in a very time consuming way with content that is potentially triggering. So if one of my students is a survivor of childhood sexual abuse, they may be very comfortable creating a domestic violence workplace protocol, that material may not be triggering to them in the same way that forcing them to write a paper about childhood sexual abuse would be. Perhaps they want to write a paper on elder abuse… also fine. We’re allowing them to decide, for them, what is the best, healthiest way for me to engage with this content? And how will I be most successful. And I can tell you as a faculty member that grades many, many graduate papers, having a variety of different projects come in every semester is a benefit for me too. It makes that grading process much more interesting. And students love it. And it is very closely linked to Universal Design for Learning which values choice for students. And in adult education, we value that self-directed learning and giving students the agency to really tie their work to what’s important to them in their career or personal life.

Rebecca: You mentioned earlier about providing access to campus and community resources as one of your key steps. Can you talk a little bit about that?

Andrea: Absolutely, and that is step or principle four. I am extremely focused on this. And I really tell faculty everywhere I go, I tell faculty, I do this and ask them to do this. And I show them my Blackboard course site. And in all of those Brightspace meetings, I’m asking where can I put my campus and community resources. I build campus resources and community resources. It has to be both. Some students will never see assistance on campus. Many students who’ve experienced trauma do not want to relive that trauma where they go to school, where they work, and they would rather seek services off campus. You have to provide both campus and community resources so the student can select what is best for their needs. But I build in those campus and community resources on my syllabus, of course, but also right on my Blackboard course page, soon to be Brightspace. I put them in the left-hand navigation bar at the top, they are front and center in every single course that I teach. And in the post COVID world, not post-COVID, but world after COVID came, students really need these resources. We’re finding at Buffalo State, as I’m sure you are at Oswego, that the student needs for crisis intervention and mental health counseling and support are extensive. So it’s been very well received by my students. And I just build it in, make it a priority. Every time you log on, you can see that there is help for you should you need it. This is also important for me because I have worked in the field as a crisis counselor doing crisis intervention, doing street outreach and advocacy. But I am not a counselor at Buffalo State. And I cannot counsel my students at Buffalo State, it would be unethical for me to try to take on that role. So I want to make sure my students can go to someone that can provide those services to them. And so before they try to come to me to seek those services, which I cannot ethically provide, I’ve made sure they know where they can go. And if they come to me, I listen and refer, listen and refer. That is my role as a faculty member. F aculty cannot and should not be providing counseling,

Rebecca: Such good reminders. I think often when faculty are thinking about trauma, they’re thinking this is not a thing I can take on. I’m not qualified. I don’t have this expertise. But the reminders that the job here is to refer and to provide those resources is a really helpful one.

Andrea: Yes, absolutely. It can be scary to think about opening the can of worms and that’s the phrasing the survivors in my research study used particularly related regarding their K through 12 teachers thinking maybe they didn’t want to ask me questions about if I was a survivor because they didn’t want to open that can of worms. They didn’t know how to deal with it. But a faculty member’s role is to listen and refer. We are not counselors, and even though I am qualified, it would be unethical for me to attempt to do that in that role.

Rebecca: I remember from your presentation that you also talked about having students reflect on a self- care plan to make sure that they have actions that they can take in case they did become distressed. Can you talk a little bit about that? And does that relate to this step?

Andrea: Yes, it does, thank you.

Rebecca: I took good notes. [LAUGHTER]

Andrea: Thank you so much. Yes, a self care plan is critical. All of my students do a lot of work with personal journals. As an online instructor, I find that journaling is a great way for me to have a one-on-one conversation with my students in a safe and private space. And so the first journal entry in every course every semester is setting your goals and objectives for the course. What do you hope to learn? How will you know you’ve learned it? What do you need from me to be successful in this course? And then I include the question: please create a self-care plan for the semester. How will you take care of yourself if you encounter distressing content, or distressing situations in this course, and in that personal journal, the students can begin to build that self-care plan. I can comment on that plan, remind them of those campus and community resources and be sure that they have thought in advance about what they will do if they experience distress or trauma.

Rebecca: Is that something that you recommend for courses that might not be those sensitive topics?

Andrea: Yes, many semesters, I have more disclosures in courses with no focus on trauma content, but perhaps we are talking about K-12 schooling and a student is brought back to an incident of bullying. And they’ve been triggered by content that was not directly related to bullying, or a potentially triggering topic, but they were brought back in time, and in so doing, they experienced dis stress. I do it in every course. I recommend everyone do it in every course universally, because it is an easy step. And again, our students, particularly right now, are experiencing so much in the world that a self-care plan is, I think, extremely valuable for everyone in every course.

John: And the last principle you list is instructor protections. Could you talk about that a little bit?

Andrea: Absolutely. This is one of my passion projects is thinking about and talking about the impact of teaching, researching, and writing trauma on a faculty member. So I’ve written about my own experience with vicarious and secondary trauma in an article “Vicarious Trauma Inside the Academe” published in the journal Higher Education. It’s an autoethnography that really goes through a process of discovering I was experiencing secondary traumatic stress, and learning how to deal with that in my various roles, certainly starting with my work as a rape crisis counselor, but then experiencing it again when I was interviewing and transcribing those long and painful qualitative interviews from survivors of sexual assault, and dealing with them. My role on campus as an expert and being asked to watch a film and comment on what to do. I often found myself in a situation where it was assumed that I would be fine just because of the role I have on campus or as a researcher, as a writer, whatever it may be, but a faculty member is not immune to the distress from the content they are teaching and from student disclosure, even in courses where I am not teaching trauma content, students disclose to me, they find me on campus, they come up to me at poster sessions, they seek me out because they know what I’ve done and what I do with my research. And so that has had an impact on me and I have tried to speak about it and advocate for faculty members taking care of themselves. In my scholarship, I really put it at a higher level. I think our campuses need to take care of their faculty members a little bit better than perhaps they have in the past. The world is changing. We are dealing with students with high levels of stress, distress. We are dealing with mass shootings in our community, with political instability, with a range of illnesses and viruses and global pandemics. It is not an easy time to be a faculty member. And it is not helpful to pretend that we are immune to feelings because we are not. And so I always talk to faculty about taking care of themselves. What is your self-care plan? Because for me, when I experienced that secondary traumatic stress, I couldn’t write. These journal articles took a lot longer than I wanted them to, because I just couldn’t go back to the material to repeat it again. It is difficult to do the work well, if you are not healthy, if you are dealing with stress, distress, or potentially vicarious or secondary trauma. And so, for me, that’s a big piece. This is, I would say, an exploding area of research. So, there is just myriad scholarship right now coming out around faculty members, instructors and teachers and their own experiences with trauma, secondary trauma and secondary traumatic stress. So there are many wonderful articles available for those faculty members who’d like to read more, and I am always available. If anyone ever wants to have a chat about teaching sensitive topics or about universal design for trauma or just dealing with trauma in our students and in the world, they are welcome to email me and I am always available to my friends in SUNY and beyond.

Rebecca: What are some things that you would recommend faculty think about for a self-care plan? I know this is something that’s on the minds of a lot of faculty having gone through a couple of years of teaching during a pandemic and really dealing with a lot of student disclosures.

Andrea: Absolutely a very pressing issue. I actually spoke at a professional development conference at Fredonia this winter break, which was 100% focused on self care: How do we take care of ourselves? How do we deal with this very chaotic world, very distressing world, stress and distress and trauma, when it doesn’t end, it really compounds. So if the COVID pandemic was over, we’d all be dealing with the potential distressed trauma and after effects of that, but we would be ideally moving forward and healing. It’s not over. It’s changing and growing and shifting, and we have no idea of what is coming next. That is really a dangerous situation when it comes to trauma. Because when the trauma is ongoing, we just don’t have the time to heal. So self care becomes that much more important. Things I think about: One, preparing yourself, doing a trigger warning for yourself for those weeks, months, days that you will be specifically dealing with trauma content in your course. Two, making sure you understand what your roles and responsibilities are. Many faculty members are not aware that they are a mandatory reporter on campus for sexual assault and for domestic violence. Many faculty members do not know about the campus care team or emergency response team. It is really important for faculty to educate themselves on what their roles are, their responsibilities are, and who is available to assist them. Faculty are not alone. And if they feel like they are alone, the threat of distress and trauma is much greater. But I know that when I get a disclosure, I first have to report it through the online system if it is a recent disclosure. I rarely get disclosures that are current. In fact, I don’t think I’ve ever had one where a student is currently experiencing sexual assault or domestic violence, though certainly, many faculty do receive these. I think it’s just a matter of teaching graduate students online. It’s a different setting, but I am prepared for those. And the first step for any disclosure, no matter when the incident was, is to report through your campus reporting system. And then I contact the care team and I often go directly to the dean of students to ask for help. What do I need to do here? Can you remind me about my legal obligation? I’ve given the student resources, what else can I offer the student? if I am at all concerned about suicidal ideation, I immediately involve the crisis response or care team to assist with that, knowing that I have a team of people behind me, that I can email the Dean of Students, and she will get right back to me is extremely helpful, because a really big threat is feeling like you are alone. So preparing for content in advance, understanding your roles, responsibilities, and who is on campus to help you, and then doing those things, which to you, are self care. Buffalo State has offered meditation courses just about one every two weeks. I have taken all of them. That’s something that is really helpful and useful to me. For other people, it may be exercise or reading a certain book or going to a friend’s home, whatever it is, that’s the personal piece. So you have the campus understanding and then the personal piece as well.

Rebecca: Well, thanks so much for sharing such really important content, especially as we head into the fall and faculty are nervous and anxious about what this next semester of pandemic might look like.

Andrea: Thank you for having me. And just the last thing I’ll say is that faculty should know that they are not alone, and that their distress, stress, or feelings of trauma are justified by the world that we are living in, and that no one needs to pretend they are above the humanity of the time that we’re living in. And so I hope your campus and all of the campuses across SUNY and beyond begin to really prioritize the mental and emotional health, not only of students, but of faculty and staff asd well.

John: I think that’s an issue that all of our campuses need to focus on. And it’s been a tough time out there for everyone. So thank you.

Andrea: Thank you.

John: And we always end with the question, and which is very much related, of “What’s next?”

Andrea: Well, what’s next? I’ll answer it in several ways. One, I think that we need to continue the conversation and really advocating for addressing trauma in our higher education classes. Research, every setting in higher education must become aware that trauma is here, it is in our society, it is impacting our students, it is impacting our faculty, and we cannot pretend it is not an issue of concern. So for me, I’ll be continuing to write about and advocate for trauma concerns being addressed in higher education. I am working on the online oversight committee at my campus, and I’m working with one of the instructional designers. We’ve talked a lot about creating more training opportunities for faculty members related to learning about trauma and addressing trauma in their courses and among their students. So I’m excited to continue that work as well. But ultimately, the world has changed, higher education has changed. We are never going back to the world that we had before. And so we have to adapt to those changes that have really come very quickly in the past few years. And so step one is sort of admitting that higher education isn’t going to be what it used to be, and that we are ready and willing and able to do what needs to be done to help our students be successful. Because I expect in the fall, we are going to have students with a myriad of very significant challenges. And we are going to have faculty who need to be prepared to help those students address those challenges.

John: And it is a positive sign that students are so much more willing to disclose their mental health concerns than I think they ever had been in the past that may make secondary trauma a little bit more challenging to address, but it does allow us to get support to students when it’s needed.

Andrea: Absolutely, absolutely. And again, really making sure faculty understand they don’t have to solve the students’ problems. That’s not your role. You are a teacher, your role is to listen refer and, where needed, to connect directly to those campus resources like your care team and your sexual assault response office.

Rebecca: Thank you so much.

Andrea: Thank you so much for having me. I love the opportunity to be back virtually on the Oswego campus and it was wonderful speaking with you both.

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John: If you’ve enjoyed this podcast, please subscribe and leave a review on iTunes or your favorite podcast service. To continue the conversation, join us on our Tea for Teaching Facebook page.

Rebecca: You can find show notes, transcripts and other materials on teaforteaching.com. Music by Michael Gary Brewer.

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221. Disability and Higher Education

Faculty, staff, and students with disabilities constantly have to negotiate when and if to disclose their disability status and whether or not to request accommodations. In this episode, Kat Macfarlane joins us to discuss the ADA and the experiences people with disabilities have in academia, including the burdens associated with accommodation requests.

Kat is a law professor at Southern University Law Center. She is a disability rights advocate, chairs the American Association of Law School Section on Disability Law, and co-founded an affinity group for disabled law professors and allies. Her work is published in the Fordham Law Review, the Alabama Law Review and Yale Law Journal Forum and many other journals.

Shownotes

  • Americans with Disabilities Act (ADA)
  • Twitter thread that prompted this podcast
  • Katherine A. Macfarlane, Disability Without Documentation, 90 Fordham L. Rev. 59 (2021). Available at: https://ir.lawnet.fordham.edu/flr/vol90/iss1/2
  • Ms. JD Blog Series
  • Dorfman, D. (2019). Fear of the disability con: perceptions of fraud and special rights discourse. Law & Society Review, 53(4), 1051-1091.
  • Studies on laptops and notetaking:
    • Mueller, P. A., & Oppenheimer, D. M. (2014). The pen is mightier than the keyboard: Advantages of longhand over laptop note taking. Psychological science, 25(6), 1159-1168.
    • Morehead, K., Dunlosky, J., & Rawson, K. A. (2019). How much mightier is the pen than the keyboard for note-taking? A replication and extension of Mueller and Oppenheimer (2014). Educational Psychology Review, 31(3), 753-780.
    • Aguilar-Roca, N. M., Williams, A. E., & O’Dowd, D. K. (2012). The impact of laptop-free zones on student performance and attitudes in large lectures. Computers & Education, 59(4), 1300-1308.
    • Artz, Benjamin and Johnson, Marianne and Robson, Denise and Taengnoi, Sarinda, Note-Taking in the Digital Age: Evidence from Classroom Random Control Trials (September 13, 2017).
    • Bui, D. C., Myerson, J., & Hale, S. (2013). Note-taking with computers: Exploring alternative strategies for improved recall. Journal of Educational Psychology, 105(2), 299.
    • Carter, S. P., Greenberg, K., & Walker, M. S. (2017). The impact of computer usage on academic performance: Evidence from a randomized trial at the United States Military Academy. Economics of Education Review, 56, 118-132.
    • Hembrooke, H., & Gay, G. (2003). The laptop and the lecture: The effects of multitasking in learning environments. Journal of computing in higher education, 15(1), 46-64.
    • Lang, James M. “The Distracted Classroom.” The Chronicle of Higher Education. March 13, 2017.
    • Patterson, R. W., & Patterson, R. M. (2017). Computers and productivity: Evidence from laptop use in the college classroom. Economics of Education Review, 57, 66-79.
    • Ravizza, S. M., Uitvlugt, M. G., & Fenn, K. M. (2017). Logged in and zoned out: How laptop internet use relates to classroom learning. Psychological science, 28(2), 171-180.
    • Sana, F., Weston, T., & Cepeda, N. J. (2013). Laptop multitasking hinders classroom learning for both users and nearby peers. Computers & Education, 62, 24-31.
  • Accessing Higher Ground Conference
  • Mya on TikTok

Transcript

John: Faculty, staff, and students with disabilities constantly have to negotiate when and if to disclose their disability status and whether or not to request accommodations. In this episode we get a primer on the ADA and discuss the experiences people with disabilities have in academia, including the burdens associated with accommodation requests.

[MUSIC]

John: Thanks for joining us for Tea for Teaching, an informal discussion of innovative and effective practices in teaching and learning.

Rebecca: This podcast series is hosted by John Kane, an economist…

John: …and Rebecca Mushtare, a graphic designer…

Rebecca: …and features guests doing important research and advocacy work to make higher education more inclusive and supportive of all learners.

[MUSIC]

Rebecca: Our guest today is Kat McFarlane, a law professor at Southern University Law Center. She is a disability rights advocate, chairs the American Association of Law School Section on Disability Law, and co-founded an affinity group for disabled law professors and allies. Her work is published in the Fordham Law Review, the Alabama Law Review and Yale Law Journal Forum and many other journals. Welcome, Kat.

Kat: Hi, thanks for having me.

John: Today’s teas are… Kat, are you drinking tea?

Kat: You know, I have an English grandmother, who… may she rest in peace… would be embarrassed to learn that her granddaughter is drinking Perrier today. [LAUGHTER]

Rebecca: Don’t worry, we’ve got you. We’ve got you. I have a tea that… I can’t remember what’s in my cup.

John: But there is a tea bag this time, right?

Rebecca: Yeah, there’s actual tea. I made a pot of tea. But I made it a while ago, and now I can’t remember what it is. It’s a black tea of some sort. I’m gonna have to go with that today, John. I really have no idea. [LAUGHTER]

John: And I have Twinings Christmas tea.

Rebecca: Oh, I had some of that earlier. So we invited you here today to discuss what it means to be disabled in higher education as both a student and as a faculty or staff member. You’ve written extensively about this subject in journal articles like “Disability Without Documentation,” and in your blog series for Ms. JD, and on Twitter. And in these spaces, you’ve identified yourself as a person with disabilities. Would you like to share a little more about that before we get started?

Kat: Yeah, absolutely. So I was diagnosed with rheumatoid arthritis when I was 13 months old. So I’ve had RA, an autoimmune disease, my entire life, and I’ve been on very strong immunosuppressants my entire life. So, RA’s a joint disease… that alone makes me disabled but combined with the immunosuppressants I’m disabled in a variety of ways. Most of my disabilities play out as mobility impairments. However, unless you know what you’re looking for, or it happens to be a quite terrible day for me, in which I’m flaring, you’d likely wouldn’t know that I’m disabled. And I spent most of my life until my early 30s, being quite ashamed of what I was going through physically, really resisting the label of a person with disabilities. And no one really knew to the point where when I finally started talking and writing about it, friends from high school were shocked to learn what that’s an essential part of who I am.

John: To set the groundwork for the discussion, c ould you provide a bit of an overview of the Americans with Disabilities Act?

Kat: Sure, the ADA, as it’s referred to in legal circles, was passed in 1990. It’s a piece of civil rights legislation, and it was a result of decades of activism by allies, but mostly by people with disabilities themselves. And so it was intended to make all aspects of American life open to people with disabilities. So that includes employment, things like airplanes, public buildings, and what we’re going to talk about today, places of higher education. So one important thing that the ADA does, it views disability through what we call the social model. So we don’t think of people with disabilities as broken or in need of fixing, they exist outside of any kind of medical model or diagnosis, rather, the ADA and the social model looks at spaces and barriers. And the goal is to remove them so that everyone, including people with disabilities, can find space to exist equally alongside their non disabled peers. The ADA has a pretty specific definition of disability. And I say specific, it’s what we use legally, but it’s meant to incorporate all kinds of disability. So the working definition that we use is a disability under the ADA is a mental or physical impairment that substantially limits a major life activity. So my RA is a disability under the ADA. If you’re high risk for COVID because of asthma, you are disabled under the ADA, which of course has become very, very relevant over the last year and a half.

Rebecca: In academia, the primary way we often talk about disability, kind of unfortunately, is through the lens of accommodations. Can you talk a little bit about accommodations, and maybe also how that doesn’t always follow the social model. [LAUGHTER]

Kat: Accommodations, the way to think about them, are adjustments that make the learning environment so no one’s getting an advantage through an accommodation. And oftentimes, people have to ask for accommodations for things that really should be in place already. So an accommodation might mean installing an extra wheelchair ramp, there should already be a wheelchair ramp into any place of public education, maybe providing material in Braille, allowing students to have absences automatically excused to the extent that they need medical treatment related to their disability. And in the context of testing, giving either extra time on a test or something that I always encourage my students to ask for when they deal with panic attacks, for example, to have breaks that are untimed. So when you’re in front of the tests, the clock keeps on running, but to the extent there’s something you’re dealing with physically, maybe the clock for your break is unlimited. Things like accessible bathrooms are not accommodations. Schools, public buildings (private schools as well), have to have accessible bathrooms in there, you shouldn’t have to wait for a person with disabilities to arrive on campus. Same thing with service dogs, no one that has a service dog should have to get permission by way of an accommodation, they’re very limited questions that you can ask someone with a service dog. In general, we want to encourage and facilitate people to be able to bring their service dog to any place that they need to get to. So again, I would think of accommodations as fairly straightforward adjustments that facilitate equality. And I say fairly straightforward, because most of them are incredibly cheap. The rare accommodation is expensive, and we think of them in terms of equality. But there’s also limits on them. So you only get a reasonable accommodation. If an accommodation would change the nature of the learning environment, if it would undo a pedagogical purpose for a particular exam, for example, those accommodations don’t have to be granted. The ADA doesn’t say any accommodation whatsoever. It says only those accommodations that are reasonable. And cost does come into play in determining whether an accommodation is or is not reasonable.

John: Many institutions require documentation for disabilities, and that can serve as a barrier. And you wrote about that in your blog earlier. Could you talk a little bit about some of the barriers that are introduced by the requirements for documentation?

Kat: Sure, documentation typically requires a person with a disability to get a doctor to sign off on the fact that they’re disabled. You’re not supposed to have to do this, if you have an obvious disability, a legal rule. However, employers, places of higher education are very reluctant to call any kind of disability obvious. And I say that at the top, because there’s all of this suspicion that surrounds the assertions of people with disabilities make, both about the fact that they are disabled, and the kind of accommodations that they require. So typically, if you’re a student who needs any kind of accommodation, maybe that includes using a laptop in class, I know we’ll talk about that in a few moments, you are likely going to have to go to a doctor’s appointment, get a doctor to examine you to confirm that you’re disabled. And the doctor often has to write, themselves, what sort of accommodations you need, which adds on this additional layer of complexity because, in my case my rheumatologist, obviously never went to law school, doctors I continue to see do not work as law professors. So there’s this very strange requirement that we asked medical doctors to make recommendations about spaces they’ve never been in. The best case scenario: that takes one appointment, the doctor believes you, they sign off. But, what are we doing to people when we require them to get medical documentation of disability? They have to take time off whatever they’re doing… job, usually… school… doctors don’t work on weekends or after hours, they work the same time that classes are held. You have to go to a doctor’s appointment, travel to get there and back. You might not have money for that kind of transportation as a student. Parking at medical facilities is very expensive, gas or transport, If you have to add that on. If you’re in a new city, and you have to see a new doctor, even if your diagnosis was confirmed like me at birth, I’ve often had to provide additional documentation that the chronic and degenerative illness I have, in fact, I still have. I make jokes like, “Oh, is there a cure for RA that I didn’t hear about?” In any event, if you’re in a new city and you’re seeing a new doctor, you’re probably not going to get that form during a first time appointment, right? And I understand that a doctor might want to see you again. But we’re sending students down this very complex, very expensive, very time consuming path. Are their absences excused? Who knows? Another point to make here is that when documentation of disability turns on a health care professional’s assessment of your disability, we are now sending people into a system, medicine, that we know to be racist, and we know to be sexist, and that we know to disbelieve, in particular, women of color’s assertions of their pain. That absolutely crosses over into what doctors think certain demographics are saying and whether they’re to be believed when they make representations about their disability. There’s no uniform documentation form that every single university or grad school or law school uses. So, you might have filled out a one-page form at your undergrad institution and it was relatively straightforward and then have to start all over again once you get to grad school and pay out all this money, just to get, what we’ve just mentioned, was a tool of equality.

Rebecca: So you’re starting to describe, Kat, doesn’t really sound like the social model.

Kat: [LAUGHTER] No, it’s so dependent on medicine. And not everyone with a disability has to have as many interactions with healthcare providers as I do, for example, right? You may use a mobility aid, you may use a wheelchair and have to see a doctor every year or even less frequently. On top of that, the intricacies of your everyday life and what you need help with, what’s difficult, or what’s easy, even the understanding that you absolutely should be in the workplace is something that a doctor often will not understand. And just as we know that there’s an incredible amount of sexism and racism in medicine, ableism [LAUGHTER] is a terrible problem to the point where people in wheelchairs often can’t get into doctors’ offices, because medical spaces aren’t accessible to them. So Rebecca, thank you for mentioning that. It’s a point that’s at the heart of my “Disability Without Documentation” paper. And so not only are we tracking back to an idea that disability only exists if a doctor says it’s there, but we’re also treating a person with disability as someone who has something wrong with them. And you have to go to a doctor because only they will possibly know how you might be able to exist at school or exist in the workplace.

Rebecca: So what other models can we advocate for that would reduce this burden and help institutions move more towards inclusion for students, but also for faculty and staff.

Kat: So, I think every school should audit its accommodation process, look at how many pages accommodations forms are, if they’re more than two, you’re already asking a lot of people with disabilities. If there is a documentation requirement, it should be minimal. Anyone that already has documentation that includes a diagnosis should not be required to get anything new. If someone is discovering that they have a disability, and they’re now in a very intense academic program that requires accommodation that they might have not needed before, if they have to go to a doctor, I think they should be able to go to the Student Health Center and it should be free of charge, and it should be an appointment that students can get after hours. We often speak of our disability services offices as a part of the university that advocates on behalf of students. I’m sure there are places like that. Typically they’re not though, right? They’re offices that accept forms and decide some part of whether students are entitled or not entitled to accommodations, but they don’t then take on any other kind of advocacy role. So as institutes of higher ed, we should think about: Well, who is supporting students? Do they have access to mentors? Are we able to put students and even faculty in touch with other people who have gone through the accommodations process and can give them advice about how to navigate it? And then in turn, is there a feedback loop back to the institution about how to make the process better? I would also assume we all need training about implicit bias, right? But, we often don’t talk about disability in that discussion. There’s this overarching suspicion about people with disabilities. And a friend of mine Doran Dorfman has written an article called “Fear of the Disability Con,” and he describes how the epidemic is Americans’ fear that people with disabilities are faking. That’s statistically what we can measure. People with disabilities don’t fake. There’s so much discrimination that you face as soon as you identify yourself as a person with disabilities that why would you? So, we need to step aside from that model and assume that people are telling the truth. When you assume that people are telling the truth, you have less bureaucracy involved, [LAUGHTER] in your accommodations process, less people need to like double check or fill out paperwork, or even receive or review paperwork to begin with. And then finally, I would say, whenever we’re talking about accommodations, or people with disabilities, we have to speak as though people with disabilities are in the room because they are, right? I’ve sat through so many faculty meetings, where accommodations come up, and students are vilified. At my last institution, someone from the disability services offices came and gave a presentation and the only images of people with disability used were children with disabilities on playgrounds. I countered that with a presentation of my own, but I felt like I didn’t exist in that conversation. It was an invitation to talk about people and to other them. So the way we discuss students with disabilities has to be very different than what we’re doing right now.

John: One of the ways in which disability issues may come up in the classroom is that there are a lot of faculty who will not allow the use of any technology produced in the last couple of centuries in their classroom. How can that serve as a barrier to students with certain types of disabilities?

Kat: Yeah, I have this conversation with law professors, I guess I have this fight. Like every August I’ll tweet something and say: Just a reminder, laptop bans are ablest. And then people debate their merit. When I talk about this, the first thing I say is people are for some reason enamored with these studies about how students learn better if they’re not on a laptop, to which I say: What about all the students with disabilities? What’s the data on their experience when they don’t fit into [LAUGHTER] whatever data set you’ve come up with? “Oh, yeah, I didn’t think about that?” “Well, they’re just a few of them”. Okay, so this is not a perfect study to begin with. Anyway, second, I don’t think professors always understand how complex getting an accommodation is. So let’s walk through a timeline. You’re a freshman, let’s say. You get your syllabus, maybe a week… best practices…[LAUGHTER] right before classes start… maybe the night before, and all of a sudden you see a laptop ban. No way will you ever have enough time to get an accommodation in place that allows you to use a laptop on the first day that you need it, for various reasons. Accommodations require this multi-step evaluation process. And I know of no school that as soon as a student asked for a particular accommodation, they’re, in the interim, granted that. This is something that I’ve advocated for my institution. In the legal context, we would call that a TRO or like a preliminary injunction where you grant relief for a shortened period of time, pending a more fuller evaluation. We don’t do that. We make disabled students sit there and suffer without the accommodations that they likely are going to get. So if you have a laptop and you have a student with a disability who gets that accommodation, what they’re going to have to go through is all that medical documentation loop that I talked about: have meetings with the Office of Disability Services, fill out the forms, wait for the accommodation to be granted. So all that time has been wasted and that student has been sitting in your classroom when they needed a laptop and have had to go without it. So I’ve heard a couple professors come up with their own, like ad hoc solution to this and I haven’t heard one that I’m really on board with yet. So some people say, “Well, if you have a legitimate disability, then I’ll let you use it…” to which I say: “Number one, how are you going to measure that?” That’s interesting, that word legitimate is strange. Number two, no student should have to disclose their disability to you to get what they are entitled to under the law. And again, this is where implicit bias comes into play. We have confidentiality provisions under the ADA, because Congress, we as a country, decided we needed certain aspects of disability to be kept confidential because of the fear of discrimination. So on a one-to-one basis, professors should not just be deciding that students can be forced to disclose their disability. So I think that doesn’t work. Now, let’s say six weeks into the semester, the student finally gets permission to use the laptop, let’s say it’s a seminar class of 12 students, one student’s using a laptop, all of a sudden, you have forced that student to disclose to their classmates and to the professor, that they have a disability. And so what I say to my colleagues is, now that you’ve heard that, I’m guessing you wouldn’t want a student to go through all of that process and jump through all those hoops. And you understand that that’s hurtful and discriminatory itself. Yes, yes, yes. So can we just do away with the bans? And they’re still reluctant, but I managed to convince a few people that at least where we are now it’s impossible to do it fairly.

John: And we should also add that some of the most popular studies that found that result did not fully control for self selection. And when there were controlled experiments, what’s often been found is that it is true that the students who are most likely to choose to use laptops are more likely to be distracted. But that seems to be an issue of the sample selection, rather than the type of modality that they’re using for note taking, and so forth. And in at least some studies, there is no significant difference when the choice of using a laptop or not, is an experimental condition that’s controlled in the experiment. So even that argument breaks down a bit.

KT: Yeah.

John: But the issue about disability is, I think, much more compelling, in any case.

Kat: I’m going to quote you, John. [LAUGHTER]

John: We can include a citation in the show notes too, of at least one or two studies that found that

Rebecca: So, people with disabilities are often subject to comments about how they’re so lucky to have an accessible parking placard so that they can park closer or have extra time on a test. And these comments are often meant to imply that an individual is unfairly getting special treatment. How do you respond? Or how would you coach others to respond to these aggressions?

Kat: It’s hard because it does really hurt. And I’ve gone through different moments of my life where it’s made me cry. I’ve had several people, including one person when I was in a law school parking lot, yell at me about using a disabled parking spot, and I had someone who I thought was a friend, tell me exactly that, that I was lucky. Now that I’m older, I think people are scared enough of me to not say things like that. What I would tell people to say in response, if they are at that place is to ask more questions to say things like, “Oh, really? Why is that? Do you think you need one too? Would you like me to talk to you about why I have one?” But again, it’s difficult, because I don’t think anyone should ever have to explain themselves. So the best answer I’ve ever heard is from a friend of mine named Jesus who drives a Porsche and used a disabled parking placard one six-month period when he was on crutches. People really don’t like to see people with disabilities driving nice cars or really, in general, having nice things. Like the assumption is, we’re supposed to be impoverished and grateful for public transportation, I suppose. But he’s done very well for himself. So one day, he was parked in a disabled spot, and he’s in a Porsche. And before you see him get out, you wouldn’t be able to see his crutches. And so some woman comes up to him and said, “This is a disabled parking spot. How dare you park here? This isn’t for you.” And so then he became very slow and dramatic, and took his crutches from his passenger seat and very slowly and dramatically placed them on the ground. And when he was finally standing upright, he looked at her and said, “Thank you concerned citizen.” [LAUGHTER] and they went on their merry way. He’s a character. And I have some friends with disabilities that when they get stared at, they’ll wave at people, or they’ll get closer to the person staring and say things like, “Oh, do I know you?” [LAUGHTER] …just to kind of like put it on them for being awkward. I also think it’s perfectly okay to get emotionally exhausted by these kinds of statements and to look for spaces, and for a lot of us with disabilities that is online, I have found community on social media that I never even knew existed. I think you should feel absolutely justified in expressing how hurtful those comments are. I think the more important thing in those situations is for allies to immediately speak up, and to call it out… to say, “You only need a disabled parking placard if you are having difficulty with something about getting into the building. Nothing about that is easy, and it’s also none of our business.” So if that can be nipped in the bud by someone else, rather than putting the emotional labor on the person dealing with the reason for the parking placard, that would be ideal. Most people say things to me when I’m on my own. I now am more comfortable standing up for myself. But there’s weird things that happen to you, as a woman with disabilities. There’s some physical safety issues that I have to be concerned with. If I know I’m working late at night, and there aren’t that many other people in the building, I might move my car out of the disabled parking spot into another spot so that people don’t know that the only person in the building is a person with disabilities, which is bad that I have to do that… so I take some extra precautions, I would encourage everyone if they ever feel comfortable getting to the place, to hold their head up high, and to know that their life is too difficult already as a person with disabilities. And if they want to ignore someone, to be my guest, [LAUGHTER] and know that they have the right to do that as well.

Rebecca: I love the emphasis on having allies speak up and speak out. And maybe if you’re an ally, be an ally and have that in your pocket ready to pull out. Practice it.

John: Might this, along with many other reasons, lead people to not take advantage of services designed to accommodate disabilities.

Kat: Yes, so something that I hear from students is, in academic settings, where accommodated students take their tests in a known space. Just to not have to go in that one space, and let everyone know that you are testing with accommodations, students will not ask for accommodations. So the shame and the discrimination that attaches to just getting accommodations is something that stops people who very much need them from asking for them. I’ve had students who are veterans with PTSD and the need for incredibly limited accommodations to just take a break for a moment. Populations like that are afraid of disability… people who went to war are afraid of the stigma of accommodations, so much so that they won’t ask for them. In my own life. I still struggle with it within myself to the point where I make this decision in my head about whether I actually need to park in a disabled spot or not on a daily basis and whether I want to deal with the person that may yell at me. The truth is, I get a form of chemo for my RA, so I can objectively say I get that parking placard. I still don’t use it on days when I think the parking lot is crowded and someone else may need it more than me. I mean, the twisted way it’s affected my own assessment of what I need and what I deserve is really difficult. So I’ve been talking a lot from the perspective of someone with invisible disabilities. Of course, many people don’t have the luxury that I have to kind of decide on and off whether I want to share what I’m going through with respect to disabilities. However, they may still want to have confidentiality that attaches to the nature of their accommodations. For example, to the extent that they need an accommodation that places them closer to an accessible restroom. None of that should be announced to everyone and so fear of those very confidential and personal pieces of information being shared also stops people from asking for accommodations. The student feedback that I get, the reluctance is the stigma from other students and the conversations that the student bodies often have in law school, at least a conversation is, “Oh, whoever’s getting extra time on tests is ruining the curve.” And so people become petrified about being perceived as someone who’s getting an unfair advantage, to the extent they do well.

Rebecca: I hear a lot of conversation about this idea of like not being disabled enough to request accommodations, like you’re talking about, Kat, and I think that’s maybe become even more visible during the pandemic, partly because disability and chronic illness isn’t static, but also there are more folks who are experiencing mental health challenges, and maybe could really benefit from accommodations, but they don’t see themselves or don’t identify as disabled. And it would never occur to them to ask for an accommodation. How do we help these students?

Kat: So I tell my students that the system is not set up to give you too many accommodations, there will be some procedural barrier, or someone that gives you less than what you asked for. So don’t undersell yourself, don’t like negotiate against yourself to begin with, is what I tell my future lawyers. I also tell them that you don’t have to use every accommodation you get. So I think I probably asked for accommodations in law school that made my test-taking situation worse, but I had a certain number of breaks I could take away from the test to stretch and if I didn’t need them, I didn’t need them. And I was always very cautious of like, “Well, am I really taking this to stretch? Or am I taking it because I want to go and like think up this great idea, you know, in the hallway?” But the point being here, if you ask for 30 minutes of extra time, and you only end up needing five minutes or you finished early, that’s a great outcome, right? And if you have them in place, maybe there’s a semester where you don’t need them, maybe there’s a semester that you do need them, but better to have them in place early. I also really work with students, to do this work myself too, right? …to never qualify the word disability and to think in terms of the Americans with Disabilities Act, to talk about all of the heroic activists that fought on behalf of myself and other people with disabilities to make society more accessible and that you’re doing a favor for yourself. But you’re also opening the door and making the process easier and you’re normalizing it for people that come after you. So there’s a lot [LAUGHTER] to put on someone’s shoulders, but I think there’s no way anyone’s ever going to give you more accommodations than you asked for and the process is quite burdensome. So you’re going to lose time and money along the way. But why close yourself out? Why take away the opportunity at equality? You got there, you’re in school, you want to succeed, your here, you got up in the morning, you maybe were flaring, give yourself that extra step of equality that the law says you deserve.

Rebecca: During the Accessing Higher Ground conference this fall, I went to a discussion about an increase of accommodation requests in medical school, and that many of these med students have never needed to ask for accommodations before. And I think that’s something that faculty, staff, students, there’s a great population of individuals who maybe are feeling like they need to ask for accommodations, in part because of their risk, maybe with a pandemic and what have you. What advice do you have for folks who have never navigated this terrain before and now find themselves having to navigate it? It’s really intimidating.

Kat: It absolutely is. And during the first six months of the pandemic, I spent a lot of time… happily, but it was a lot of time… counseling friends from all over the country in different lines of work. And the first barrier was: “I don’t know if I deserve this.” And it absolutely was: :Yes, you do.” So if you can’t get a hold of me… if someone contacts me, I’ll either talk to them myself or find someone that they can get in touch with… but you need to have someone who is familiar with the process talk to you about getting accommodations. This is a very technical piece of advice, but often schools and whether you’re an employee or a student, the documentation form will inform the doctor to send the form directly back to the school. I say, “No, we don’t want anything going directly from my doctor’s office to my school or my employer and there’s nothing in the ADA that requires that kind of like fascist cutting out of the person with the disability.” So I say: “Be active in this process. Call the doctor’s assistant. Speak to the doctor directly. Use plain terms. Think about what you need, put it in your own words.” Again, you’re not doing anything nefarious here. You are the expert, you are the person that understands your body and your needs and your school existence or your working existence. And you try and talk to, especially medical professionals, get them to treat you like a peer and with respect and guide the discussion yourself because once it starts feeling a little bit out of control, and you don’t know what the doctor is written in the form, and a doctor might make a mistake, it’s harder to fix that. So from the outset, what I advise people is, let’s talk about what makes sense for you. Let’s get a hold of the person in the doctor’s office that actually fills out these forms. Are they okay with you being specific about what should go in them? No doctor’s office is like, “Oh, no, we’d like to write this from scratch.” No, [LAUGHTER] they like when you help them. But you need to talk to someone about that. With respect to the pandemic, what’s been really difficult… a lot of things move very quickly, at least, let’s say, in the first six months of the pandemic and then in fall of 2020, when we were all trying to figure out, are we going back in person or not. And schools did a real disservice, I think, to students and faculty and staff alike, by setting up these ad hoc systems that didn’t have any of the confidentiality protections that accommodations typically do. What I tell anyone who needs a COVID related accommodation is to call it a reasonable accommodation under the Americans with Disabilities Act. Once you use that phrasing, you’re entitled to quite a few protections that you don’t always get if you just like send back an email form checking, “Oh, I want to work online.” So there have been different ways that schools have tried to not put people into the accommodation trap, because it’s more time intensive, and also it would likely mean that more people get to work or learn online. So to summarize: [LAUGHTER] talk to someone that’s been through it that knows, that can guide you through it, don’t hesitate to recognize that something like asthma is considered a disability because it makes you high risk for COVID. You’re entitled to the ADA protection, and then definitely ask for an ADA-based reasonable accommodation as opposed to any other phrasing that the school comes up with itself. That’s as close to legal advice, I think, as I’ll give.

John: Higher ed institutions have varied quite a bit in terms of addressing those issues. Some are very receptive and have given faculty the freedom to teach the modality that is most appropriate, and others have been much more rigid and have been much more likely to reject all such requests across the board, which has created a lot of challenges for faculty.

Kat: Absolutely.

John: More generally, though, higher ed institutions have, for several years now, been increasing their diversity, equity and inclusion efforts, but in those they often leave out issues associated with disability. What are some of the top things that institutions of higher ed can do to be more inclusive for people with disabilities?

Kat: So when we talk about inclusivity, with respect to disability, I would say we’re starting from a different place than some other discussions. And what I mean is, many institutes of higher ed are not legally compliant with the ADA. So the first step, I would say, is an immediate physical audit of all of our physical spaces. There’s an amazing TikToker are called Mya. She’s a student at UMass Amherst, she uses a wheelchair, and she has been going around the entire campus, explaining what buildings she can’t get into, the lack of push buttons, there’ll be an accessible doorway, and then she’ll find herself at the bottom of a flight of stairs. Again, it shouldn’t take someone who uses a wheelchair and enrolls as a student to find those things out. It’s not that expensive to do this kind of physical audit, I think everyone really needs to do it. I work now at Southern which is an HBCU that is progressive in many amazing ways. Before this, I worked at the University of Idaho and found myself with a serious leg break and in a wheelchair for about four months, and discovered, by way of being in a wheelchair, that the building wasn’t accessible. I couldn’t use my office, I couldn’t get into the classrooms. I couldn’t reach the soap in the bathrooms. And that’s, in fact, partially why I became an expert in disability law, I didn’t set out to be it, I had to become that person. I had a couple of friends on the faculty who advocated for me personally, but it was humiliating, and nothing changed, even though I would bring it up every single semester. And they were fairly easy things like get a push button outside of these doors. Part of the reason I left was my fear that a student who used a wheelchair would get there and there’d be no way to make that space accessible to them. So an immediate physical audit. I would also do an immediate review of your institution’s accommodations paperwork. Can you bring it down to fewer pages? Can you cut out the documentation? Is there a way to accept prior documentation and make it straightforward? Some of the things we talked about… putting certain accommodations in place at the moment they’re asked for rather than when the full accommodations are approved. An example is something like note takers. When a student asks for note takers, very rarely is that request denied. So why not just from the first date always have a note taker in a class? Fine. if the accommodation actually gets rejected? Oh no, we’ve given the student notes for four weeks, what will we ever do? Our entire institution now is lacking in integrity. No, we’re fine, right? [LAUGHTER] It just doesn’t matter that much. And then, as I mentioned before, we need to have these conversations assuming people with disabilities are in the room. They have to be less patronizing, right? There’s a lot of like condescension involved in talking about people with disabilities. I think after all of that is done, then we can kind of talk about beyond legal compliance. What does it mean to be welcoming and inclusive? As a person with disabilities who in academic spaces still struggles to like, move, I’m not yet ready to talk about being welcomed. In fact, what I say to people is like, you can be mean to me, as long as I can reach the soap in the bathroom, I’m at peace with that. [LAUGHTER] So we need to have those conversations first, then you can throw me a pizza party.

Rebecca: I think also, in addition to probably those physical spaces, we should be doing some virtual audits as well. And making sure those spaces are accessible for a wide range of other disabilities who would benefit from making sure those materials are also reachable.

Kat: And anytime you can put the onus on someone who isn’t a person with disabilities to double check that things are working, that’s such a relief. And so sometimes that means double checking, if you have note takers, did the notes look good? Are they a mess? When I was a student, I received notes. I asked that my note taker have the same GPA range as me? [LAUGHTER] Yeah, no, I did say, “You know, there’s some stuff that’s missing. Is anyone reviewing them?” “Oh, no, we don’t have time for that.” Okay, so are we going through the motions or are we doing something that’s meaningful? A lot about that was getting feedback from students. I have seen student activism at law schools. When student groups for people with disabilities and allies are formed, they can do so much more than I can do as a faculty member. So to the extent you don’t have a disabled students group on campus, and you want to be an ally, I would think about how to get one started, because just the presence of that group is so meaningful. And in my days of activism, at least when I was like marching in the streets, are long gone. But when I meet these young people, ah, they’re so exciting. And they think of things that I won’t think of because I haven’t been in school for a while. Now. I’m on the other side. So I find listening to student activists very helpful and eye opening.

John: Do you have any other advice that you’d like to pass on to our listeners?
:

Kat: I would say anyone that goes into a position of leadership should be educated, or at least know who to turn to with respect to disability access, and disability inclusion. And so that can mean high level things like making sure that you hire someone with disabilities, they are given all the tools to succeed. It can also mean okay, you’re someone, maybe a student, who plans a conference. Is the conference accessible? Do we have a checklist that makes it easy for people who maybe might need an ASL interpreter, for example? Is all of that there and available? Are we treating disability awareness as a key part of the skill set that you need to be a leader?

Rebecca: I love that advice and something that’s definitely not typical as part of training or just general awareness that we share within our community in higher education. So we always wrap up by asking, what’s next?

Kat: I’ll tell you about my scholarship and then I’ll tell you what I’m thinking about with respect to my disabled community in general. So my next piece within the disability law sphere is looking to the way we force medical encounters on people with disabilities just to get access to benefits, for example, or to get access to accommodations in the workplace. And to the extent that we are a society that believes in medical choice, or we pretend to, or we have respect for bodily integrity, why does that change? Why are we so willing to force medical encounters and sometimes really intrusive medical examinations on people with disabilities? Aside from that, I, as a high-risk person, every day, I am still fighting for my life. I take three immunosuppressants, like a lot of people with autoimmune disease. And so I am tired [LAUGHTER] of asking people to pull their mask above their nose. This happens, for example, in the waiting room of the chemo infusion center. So, there are people sitting amongst cancer patients who have their masks not above their faces. So I think for people with disabilities, the pandemic has been petrifying. And occasionally we feel… occasionally… quite often… we feel abandoned. And when it comes to discussions in higher ed about, “Well, should people be back in person?” …and as soon as the conversation turns to “Well, I just prefer to be in person.” That’s great, but don’t forget our humanity. And again, don’t forget who else is in the room and part of that discussion. And earn a minimum, we should be trying to keep people alive. And then second, we can talk about whether you feel more comfortable delivering your contracts lecture [LAUGHTER] 10 feet away from someone or over Zoom. As I say that very critical statement, I work for a… we call our Deans Chancellors down here… and he starts every meeting with a reminder that our safety is his highest concern. And even though there’s no indoor mask mandate in Louisiana, we have a mandate at my law school. I work in an HBCU, and the African-American community has been hit disproportionately by COVID, and the recognition of what it takes to keep everyone safe is very much on my boss’s mind in a way that I truly appreciate. So it’s not an announced concern for people with disabilities, but it’s sort of like a universal design, right? …safety for all, that has tremendous implications for high-risk people like myself.

Rebecca: What a great perspective to be having when you’re in a leadership role.

Kat: Yeah, absolutely.

John: It’d be nice if that were more widely shared across all institutions.

Rebecca: Thank you so much for the wide variety of information that you’ve shared with us today and advice and some ideas about ways to continue to support our community.

John: Thank you.

Kat: Thank you.

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John: If you’ve enjoyed this podcast, please subscribe and leave a review on iTunes or your favorite podcast service. To continue the conversation, join us on our Tea for Teaching Facebook page.

Rebecca: You can find show notes, transcripts and other materials on teaforteaching.com. Music by Michael Gary Brewer.

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